Tuesday, September 23, 2008

NCI

Yesterday, Aimee arrived, got admitted, and was scanned. Today, she had a port put in her, and she's due for 2 or 3 more MRIs later today. The fun, however, doesn't really start until tomorrow, sometime in the afternoon, when she gets her first dose of chemotherapy. Dr. Lanier explained to us that the chemo will be at its worst in the beginning, for 2 or 3 days, and then gets better. (Although Aimee's held on to her red curls throughout this, he said she'll most probably lose them this time around.) The schedule for the treatment will be slightly different than what I posted before, but the content will remain the same.

But so far, things are good. Aimee's been sleeping and feeling ok.

For the duration of her treatment, they've put me up in the Safra Family Lodge , which is right next to the hospital. No back-breaking cots this time, and I can go back and forth between the buildings 24 hrs a day. I don't know if Aimee can receive mail directly here, but you can send it to me at the lodge, and I'll gladly deliver it to her. The address is

c/o The Safra Family Lodge at NIH
65 Center Dr.
Bethesda, MD 20892


Other miscellaneous events, observations, ramblings:

- Aimee and I tried to watch "Heroes" on NBC last night. But a number of things got in the way. First, the nurses had to take a blood sample, but since Aimee had to fast before her scans, her hydration was low, and it was difficult to get a good vein to poke. So they stuck her 7 times. But she was stoic throughout, until the last nurse finally succeeded. You see, they have a policy here at NIH where a nurse only has 2 chances to find a vein. If they are unsuccessful, then they call in another-- hopefully more experienced-- nurse to give it a try. So, 4 nurses had already tried, some only daring enough to try once. But each had their own unique approach, and each promising they'd get the vein. One claimed to have the steadiest hand on the floor, one professed the "old school" nursing techniques, but none of these worked. Finally, Nurse Ann Brady came in and dimmed the lights. "Don't be alarmed-- I don't work by sight, but by feel," she said. Amazingly it worked, and Aimee, who had been quiet the entire time, blurted out, "Ann Brady, I love you." Aimee wasn't in a lot of pain, though-- she was just frustrated that she couldn't get any rest throughout the ordeal. (With the chest-port put in, there will be no more needless needling-- thank goodness.)

By the time they were finished, most of the "Heroes" premier was over. And then it was just to difficult to get into. I guess we also remembered why we stopped watching it last year too. There's really not much more to that show than the mere novelty of the superpowers. The script is poorly written, and many of the characters are just too bland to watch.

- There's mass offered daily at 11am and there's a chapel of the Blessed Sacrament on the 7th floor. The chaplain is a little bizarre though. He stopped by yesterday, only to invite us to play with puppies. (Apparently, pets are supposed to help reduce stress. Pet therapy, they call it.) So no God today, just Dogs.

- They have an arts and crafts room somewhere on Aimee's ward. We have yet to see it, but we're certainly curious about what it has. Scissors, paste, felt, and googly-eyes? I guess we can start working on Christmas presents...

- Some good news: Aimee put on 5 pounds since her last visit here, mostly due to high calorie shakes and smoothies that the dietician prescribed. And they actually tasted pretty good too. (I mixed and tasted them for her.)

20 comments:

Claire said...

I love you both and I'm constantly thinking about you & praying for you. I'm not that far away, so if there's anything you need or any way I can help out, I'll be there.
Claire

Christl said...

We also send all our love and all our prayers for both of you. May you both be bathed in healing light and grace. Please tell Aimee we are thinking of her constantly and know that her incredible spirit and the love you have for each other will conquer all this (red curls can always grow back and bald is beautiful anyway). If there's anything you need or want, please holler, text, email, or call. We have a delivery system there with V and G a couple of miles away from you.

Love a thousandfold,
Chris and Bainard

meg and greg said...

Oh, goodie, goodie, eye candy for the blog junkie!!!
Thank you so much for the update. I didn't really mean for you to have to do it. I just meant to give you something for you to read while waiting for the right vein to pop up.
So you both are awesome.
We are saying our prayers to the Good Lord above and hoping for a little help from Padre Pio whose feast day is today. (I met his cousin remember at conference?)So keep your chin up and remember, chocolate makes the medicine go down. Oh, wait, isn't it a spoon full of sugar, oh well. Love from KS

Anonymous said...

God bless you Cowans! We are praying for you daily - and sending many, many good thoughts your way!!

With love,
Katy, Wilsons, and Borses

Kathleen said...

Aimee, Observing some of my favorite actresses and newscasters, I've noticed that some of the prettiest wear their hair short which draws the eye to the radiance of their faces. You're one of the lucky ones whose beauty will only be all the more highlighted if those red curls disappear for a short while. I'm thinking of you a lot and you and your fam are in my prayers. Ciao for now ~ Kat
PS Thanks Will for the update and for taking such good care of Aimee !

Kathleen said...

PPS As good o'l Maureen Mooney reminded me, today is the feast of St Padre Pio whose most famous phrase is 'pray, hope
and don't worry'.

Mama said...

Aimee and Will - Sending big prayers your way!! (Actually, I'm sending them God's way, but don't worry... He knows where they need to go!)
Much love!
Tiffany, Neil, and kiddos

Michele said...

I think of you both often and am rooting super hard for the TILs! Go little guys!

RKR said...

Hi guys,
You're the best. Praying hard here. Might I suggest making your own favorite pet in the arts and crafts room?
Love and hugs,
Nee

Anonymous said...

Thanks for the update! Keep 'em coming.
Pb and Kate

Anonymous said...

PS A question about Renee's comment: Wasn't there a Eureka episode warning against adding carnivore pets to the family?

Anonymous said...

You can take the girl out of the red curls, but you cant take the red curls out of the girl! We love you!

-Dot

Anonymous said...

Pet therapy? They obviously have not heard of our Baby Therapy!

Maddy is missing you both but she had a blast hanging out with the cousins the other day! And we can't wait to spend next week with them!

Glad to hear all is well! We are praying for you! If you need anything at all please let us know. Oh, and Will, if you could scratch Aimee behing the ear for me! She loves it when you do that or thats what she always used to do to me when I was having a rough day!

Love you tons,
Betty, Chris and Maddy

meg and greg said...

I got one better...with your finger, trace a circle on the palm of her hand and say,
Round and round the garden,
Like a teddy bear,
One step, two step,
Tickle under there.
Then tickle under her chin.
How many hours did we big kids have to do that to the little kids to get you to sleep?
The one consolation, in the winter, we could push you guys over to the cold side and steal your warm side! Heeheehee
(I don't advise you try that one Will. The doctors frown on stealing the patient's bed.) Ah, those warm, fuzzy, childhood memories...

Petrus said...

Just play with the puppies for goodness sake!! :-) Although, I last heard that Quisquis has wandered down to the mid-Atlantic region. Maybe you can play with him.

Lots of love and many prayers.
Jess

Anonymous said...

Will, thank you so much for your update :) We check here daily to see what is new - And of course, our constant prayers are with you, Aimee, Xavier and Tilly.

Please be sure to give Aimee a hug From syracuse. It is getting chilly up here now... so the hug would be a warm, fuzzy bear kind...

We are right with you in thoughts....
WE love you all *(even though we haven't officially met yet Will... )

All our prayers,
Love,
Chris, Tom, Liam and Marc

w. wilson said...

We're happy to hear you are settled and well (if poked and prodded).

We're thinking about you!

xxoo Whit & Co.

Anonymous said...

Soooo, now we get to shave our heads!!! I have been waiting a long time to try it and the razor is plugged in and waiting!!! I will probably try it out on Matt, Vinny and Joe Rocco first but once that thing is warmed up, just give the word and I'm next!!!!!

We love you both and Everyone here is praying for you!
lots of hugs kisses and prayers
Jo, Matt, Cece, Joe Rocco and Vinny

Anonymous said...

I'm with you too, Jo!!! I've been trying to decide what hair cut to get next!

We can have a shaving party!!

Anonymous said...

Oh boy!! We have Scarves all ready!!! Of course they are lily Pulitzer, Cartier, and Hermes, but we are afterall slightly Mamified!!! Prayers, love and strength to you!!! You (he) can do this!


Love & Peace