Wednesday, September 24, 2008

Day 1

Nothing yet. Aimee's still waiting on an MRI, which will happen late this evening. Afterwards, the chemo infusions will begin. She's doing well, apart from back and leg pain. They've had her on a saline drip all day, so she's pretty well hydrated. And that always makes a big difference for her.

I've posted a tentative schedule on the right. It's technical, I know, but it's mostly for my sake so I can keep track of what's ahead. I say it's tentative because the doctors will be following it somewhat loosely after the TIL cells have been given to her. They'll only give her as much IL-2 as she can reasonably tolerate, erring on the side of safety. And since her immune system will be knocked down, there will be around a week of recovery time. Could be less, could be more. (Apparently, her immune system won't be back to normal for about 6 months after treatment.)


Also:

- The priest, the other one, the non-dog one, just dropped by to offer communion. A little communio-therapy with her immuno-therapy.

- Once all the tests and scans and all the running around this hospital is done, we're going to try to video-conference with the kids back in Franklin. Might be fun, could also be disastrous. I don't think the kids miss us quite enough to sit still and talk with us for any extended period of time. But even a few seconds will be worth it, just to reassure them that we still exist as something more than just disembodied voices on the telephone.

7 comments:

RKR said...

Thinking of you and the kids Will. Please give Aimee my love.
Hugs all around,
Renee

meg and greg said...

So great that things seem to be going smoothly. Prayers and good wishes are streaming your way from far and near. The kids mention your names at school and we have every little old lady (and gentleman) west of the MS working the prayer chains for you.
Keep thinking of it as a get away to a very expensive spa. There you get to relax by the pool,(sitting by the toilet), get a massage,(Will rubbing your back), have nourishing meals, (IVs and smoothies), and even get an entirely new hair-do! With such good thoughts, you and your new manicure, facial, hairdo, and figure will be home again with the kiddies, relaxing and recovering.
We love you both. Heal well.

Petrus said...

Lots of prayers!! And good wishes. I think the puppies are a good idea.

Anonymous said...

It is such a blessing that children X and T's ages have such a poor sense of time! They're in the moment, not tortured with missing you both. I do hope the video conference works out and that you get to see each other. Sending all our love especially these next few days.

Hilary and Kevin

Anonymous said...

You are ever present in my prayers and thoughts, and I hope this treatment is the magic bullet. The puppy therapy is funny, perhaps their inspiration came from the Paris Hilton for president plan for national health care..

Annie

Anonymous said...

Thanks for the update, Will!! We're sending tons of hugs and kisses and prayers!!

Lots of love,
Betty

Christl said...

Small and large prayers are being sent your way all through the day and night. When things are toughest, know that another prayer is being sent your way to give you a hand, a heart, a thought, a hope, a push forward, a link to another saint in your corner--they are legion, and we join with them in praying for your recovery.

All love, hope, and prayers,
Chris and Bainard